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1. How did you arrive at the acronym PATSy?
PATSy (Patient Assessment Training System) was an early project
acronym creation that has stayed with the program. The PATSy acronym
accurately described the program when funding was sought from an
European Union Education Grant source to support PATSy's use in
clinical training. However, like many acronyms, the project it
described originally has outgrown this early acronym.
2. Why isn't PATSy available to North America and Australia yet?
PATSy contains video and audio recordings that can sometimes take a
long time to download if the user happens to log on at a time when the
Trans-Atlantic or Pan-Pacific internet traffic is high. To minimise
this outcome, it would be desirable to have a local university serve
as a mirror site to be able to host and serve PATSy to a local
community.
3. What is involved in "mirroring"?
To become a PATSy mirror site, a university will need to have a
well-supported technical computer environment that can maintain a
Unix-based server and website. The mirror site host university will
also need an individual or group that will accept responsibility for
overseeing appropriate use of PATSy's software and content. The
software and content will be updated periodically by the main PATSy
project team who are based in the UK.
If you are interested in having your
local institution become a mirror site, read this
call for expressions of interest.
4. Why isn't the Dyslexia domain titled "Developmental dyslexia"?
The choice of the label for the dyslexia domain was decided by
Professor Maggie Snowling. She has indicated that the term
"developmental dyslexia" was not used primarily because the term has
fallen out of common usage.
5. I have my own collection or audio and video recordings that I use
in my own teaching. May I have these incorporated into PATSy?
The PATSy Team are open to receiving multi-media case material and
data. With videos however, it is important that the person in the
video completes PATSy's Consent Form (download from http://www.patsy.ac.uk//consent.html
). Where consent is not possible, then the person's face can be
concealed using post-video editing facilities. There is a unique
solution to each case and which is selected is decided in consultation
between the contributor and the PATSy Team. Where appropriate, the
post-recording editing will be covered by the project team. (e-mail:
leadteam@patsy.ac.uk ).
6. May I put my own references relating to someone else's case?
Yes. Simply complete the form that is linked from all PATSy " Relevant
Publications" or "Publications relevant to this participant" pages.
7. May I issue a username and password to a fellow researcher working
at another organisation?
Sorry - you may not. The terms and conditions of PATSy are designed to
protect agreements with patients/participants and contributors. This
responsibility lies with the PATSy Lead Team. However, to allow PATSy
to be used as it is intended, local administrators are delegated
authority to issue usernames and passwords to students and staff who
are members of the subscribing department and to ensure PATSy is used
by those individuals in accordance with PATSY's Terms and Conditions.
Please refer individuals for whom PATSy access is sought to the
PATSy Lead Team (leadteam@patsy.ac.uk). The
PATSy LeadTeam will decide in consultation with the local
administrator what the most appropriate arrangement of access should
be.
8. Do I violate PATSy's Terms & Conditions if I allow Open Day
visitors to view PATSy's patient/participant content?
Yes. A useful guide in doubtful situations is to regard PATSy with the
same duty of care as you are expected to have with a patient medical
record or confidential documents.
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